Saturday, May 30, 2015
So last weekend wasn't exactly what I thought it would be. My daughter was drunk, hung over or sleeping much of the time. She wanted to escape and I wanted to show her someplace I love. Blah, blah, blah, as she would say. Poor me.
And then I went back to work. My work always puts my problems in perspective and helps me drag my head out of my ass. Yesterday one of our docs came in as a patient. He said it was very strange being on the other end of care and that he feared he had left it too late. Cancer is a nasty bugger. My department has 71 people working in it. According to the stats, 28 of us will develop cancer and 18 of us will die of cancer.
It doesn't discriminate. I had a patient yesterday who had cancer when she was four; she's in her thirties now and it's back. I've had patients as old as 92 and as young as 6. We don't usually get children, they go to the University but children with brain tumors come to us for radiation. It's not unusual to have patients the same age as my children.
We have one young lady, I can't remember her age, but probably in her late twenties, she was diagnosed the day before her baby was born. Her baby girl is seven weeks old now. How this young woman doesn't cry every single day that she comes to us amazes me. Yesterday I had an older woman, 75 who needed a central line. We lay her down on the x-ray table and she started to cry. I told her to go ahead and cry. She was terrified of the line, didn't know what to expect and was shocked at how quick and easy it was. She smiled when we were done.
Another man yesterday that we put a port in was one of the nicest people I've ever met. He was so gentle and wise. He told us how much he loved his daughters and his granddaughter. He shared his life view with us which was basically be kind to everyone, you don't know what they're going through.
I get tired of bullshit at work but I never tire of my wonderful patients, even the tough ones. Not all patients are so sanguine. I've only had one horrendously angry patient. His anger emanated from him in waves. It wasn't the cancer though, I imagine he has been angry his whole life. It was hard to stay with him though. Brought back a lot of memories of my dad and I felt scared and defenseless again. But that is rare.
Mostly I just listen. Sometimes I give hugs. Often I give Kleenex. And sometimes I cry as well. As I tell my patients I am a weeper and that's okay.
My life is pretty good on the whole. I doesn't always turn out the way I think it will, rarely in fact, but I'm learning to be okay with that too.
at May 30, 2015
Thursday, May 28, 2015
This is where I complain.
Where life is not as I wish it to be.
Where people do as they please.
This is where I learn to breathe
because my breath is truly all that
I can control.
This is where I hurt and
this is where I let go.
This is where I remember
that my children are not mine
but belong to the universe.
This is where I sigh.
at May 28, 2015
Friday, May 22, 2015
Things I'm thankful for today.
My middle daughter is flying in tomorrow to visit for a few days. On Sunday, the big guy, both my older kids and I are heading to the mountains for a couple of days. We will show them the Columbia Icefield, Tangle Creek Falls, Horseshoe Lake, Pyramid Lake and whatever else we feel like seeing. I'm making a picnic lunch for us to eat in the mountains. I've never been to the mountains with my kids. It was too hard to travel with Miss Katie. I want to share this beautiful place with them.
I have four days off!!!
Katie is doing exceptionally well on her new drug, Citalopram. Her anxiety has gone way down. She's enjoying herself again. On Monday we had a wiener roast with our granddaughter and Katie got to hold the baby. When I drove Katie home she didn't hurt me or even try to hurt me. When I dropped her off at her house she walked in and started looking for nail polish. There was no drama, no head banging, no screaming or hair pulling. She was happy to be home and wanted her nails painted. I am most thankful for this; for that look of perpetual fear to be gone from my daughter's face.
The big guy's daughter brought the baby to work yesterday and we all had lunch. The big guy got to show off his granddaughter and daughter to everybody. The big guy is happy. I love that man and I especially love to seem him happy.
The trees beside our balcony are in full bloom. See above. The smell is amazing.
A walk in the river valley after work. Sunshine. Trees flowering. Everything growing.
My lovely patients.
A glass of wine after work.
What are you thankful for today?
at May 22, 2015
Sunday, May 17, 2015
I was going to answer Ain't No Shrinking Violet by email because what I was going to say to her sounds too horrific but then I changed my mind.
Katie was a sunny, delightful little baby. Always smiling and always a baby. She didn't walk until she was three. As she got older though her behavior got worse. At first it was just small things like she pulled the neighbor girl's hair, but when she hit puberty at eleven the behaviors escalated and she took out the worst of it on me and her sister.
When Katie was fifteen and a half we found a group home for her to live in. It damned near killed me. I felt so bad. We moved her into a group home because my husband and I just couldn't do it anymore. Our marriage was falling apart. My son was lost to drugs. Katie's older sister was acting out, drinking, dropping out of school, running away. Katie demanded so much time and energy that there was virtually nothing left for anybody else in our family. She needed one on one attention while she was awake and even then it wasn't enough.
The group home didn't go well and Katie's anxiety increased, her behaviors got worse and she was evicted from her group home. I didn't know what else to do with her so I brought her home and my marriage ended then for good. My husband did not want her home.
We brought her home and I tried to find help. I couldn't find a psychiatrist who would deal with a child with mental disabilities. I took her to emergency and we got sent to another hospital where I was given a phone number for a crisis line that couldn't help us. Katie's behavior got worse. She pulled my hair, scratched me, pinched me, ripped my clothes. She would attack me while I was driving. One day she got hold of my hair, dropped to her knees and I went with her. We were in the bathroom and my husband couldn't get into the bathroom to help me because we were blocking the door. More than once while driving someplace with Katie I thought about driving into an oncoming vehicle, hoping to kill us both. It was that bad. I felt hopeless.
We tried her on a new drug which had paradoxical side effects. It didn't calm her at all. Her and I ended up in West Edmonton Mall, her screaming and crying at the top of her lungs, me trying to get her through the mall without me or anyone else getting attacked by her. By the time I got to the van I was shaking. I drove to emergency and told the young nurse at triage that they had half an hour to get a psychiatrist to see Katie or I would abandon my daughter. The nurse looked at me and said you can't do that. I said I could and would. Thirty minutes later a social worker was there to talk to us and then we had an appointment to see a psychiatrist and a team the very next day.
What I didn't know is that very same day, a man had killed his autistic son and then himself in the city because he couldn't get any help. The next day we got help. The help didn't do a lot but it gave me hope which is what I needed more than anything. After a lot of prayers and a photo of the Madonna in my the northwest corner of my home (I was willing to try anything to get help), we found the agency that cares for Katie now. They specialize in caring for people with behavioral problems. Katie was seventeen and a half by then.
The group home where she lives now is really only a townhouse with one other young woman with Down Syndrome who has some very violent tendencies. It's not perfect by a long shot but it mostly works. The agency knows how much consistency and routine matter to both Katie and her roommate.
A few weeks ago Katie saw her psychiatrist and was started on citalopram. Her anxiety was less today and last weekend. I'm also working hard on staying calm and watchful. She doesn't have the capacity to self regulate and goes from happy, happy, happy to crying, screaming and slapping herself very quickly. I've been watching her closely, holding her when she starts to get anxious. I tell her over and over that she's safe. I stay calm which for me is not easy feat. I am a drama queen who has a hard time self regulating myself but I'm working on it.
I guess my point is, raising a child with behavioral problems is dangerous and beyond difficult. It's dangerous because it's so fucking hard and it's also dangerous because you lose hope and start to think that death is the better alternative. There were so many times I wanted it just to end. It takes a village to raise a child. It takes a whole big city to raise a disabled child with behavioral problems. None of us can do it on our own. It's too big and too hard. So my message to Ain't No Shrinking Violet is this, get help now, somehow, anyway you can; for your life and for your son's life.
at May 17, 2015
Sunday, May 10, 2015
I had a lovely few hours with Katie today. Almost two weeks ago she was started on an antidepressant to see if that would help reduce her anxiety. And yesterday I realized that I had to see my daughter as she really is, not how I want her to be.
I come by it honestly, this desire to see things as I want them to be and not how they are. My mother was the same way. Needless to say it leads to endless disappointment.
Since Katie turned eleven, almost twelve years ago, she has been physically attacking me. She pulls my hair, pinches me, scratches me, bites me, rips my clothes. The hair pulling is the worst. And every time she does this I am hurt both physically and emotionally because well, how can my baby girl hurt her own mother? My feeling are hurt, every single time, for almost twelve years.
Katie attacks me when she's upset, when she's anxious, when she's scared. It's understandable and a part of me does understand that this is her acting out her feelings, feelings that's she unable to understand or even put a name to. But another part of me is hurt and surprised. So why would something that has been happening for almost twelve years be a surprise to me? Good question.
It's a surprise because I don't want to believe that my beautiful daughter is dangerous. But she is dangerous and I refuse to accept this. It's funny because I always talk about accepting my daughter the way she is but I haven't really because if I had I would have been more careful around her, I would have understood how dangerous she is.
So today we visited and for the first time I accepted that Katie is dangerous, that I need to be careful around her. The big guy has known this since he first met Katie three and a half years ago but obviously I take a lot longer to catch on.
And today, I don't know if it was the new drug or my realistic understanding of how dangerous my daughter is, we had a good day. I didn't force things. I didn't make her be what I wanted her to be.
The hard part about writing this is also seeing myself as I am. Deluded. Unrealistic. Unaccepting. Bruised and battered from hitting my own head against a wall for years and years. I suck at accepting what is but I am learning.
at May 10, 2015
Monday, May 4, 2015
I'm home from work today because I'm going to Katie's psychiatrist appointment later on this morning. I want to find a way to reduce Katie's anxiety without turning her into a drooling zombie because right now the two choices are pissed off octopus or drooling zombie.
My son graduated on Saturday with his degree in Business. I'm so proud of him. We kicked him out of the house when he was seventeen and would rather smoke weed and sleep all day than go to school. Looking back I wouldn't have done that again because he careened off into a life of crime and drugs. But at the time, with two young daughters to protect, an angry, drunk husband to fight with and my own demons, I didn't know what else to do. He lived that life for almost ten years and by the second time he got out of prison, he had decided to turn his life around. It wasn't easy for him. I remember the first "nice" girl he went out with dumped him as soon as he told her that he'd been in prison. But he did it. He went back to school, without his high school diploma and he struggled and he worked and he thrived. He got gently pushed from the nest a couple of years ago which made him angry with me but he needed to succeed on his own. If you don't work and struggle for something, if it's just handed to you, then you don't appreciate it. On Saturday I watched him cross the stage to receive his graduation hood and my heart was pounding, knowing how hard he had worked and how much this meant to him.
After the ceremony, in the lobby, I watched as he hugged friends and congratulated them. He was happy and proud and that made me happy. When my son was growing up, school convinced him that he was stupid. He didn't fit in. He learned to read late, almost twelve. He had trouble sitting still and paying attention. Now, he knows what I know, that's he's a smart young man who can work hard and who can succeed.
at May 04, 2015
Sunday, May 3, 2015
This is my assignment today, to write about the good stuff in my life instead of just the bad stuff, to find balance in my writing and my life.
Two weeks ago we were here, me and the big guy, sitting beside the Athabasca River at four in the afternoon, enjoying the view and the sunshine. We go to the mountains fairly often. They fill up my cup but why do they fill up my cup? The big guy says it's because I can't control things in the mountains which is true but there's more. There's something humbling about the natural world. It puts things in perspective. Makes you realize how small you and your problems are.
I love trees. I really love trees. To me they symbolize steadfastness. They stand where they are planted. They quietly do their thing as the seasons pass and when they die, they lay down and feed the next generation. I admire them for that and for their astonishing beauty. I'm a visual person and I drink up what they have to show me at any time of the year.
As we sat beside the river we could hear the birds singing and not far from us there was a small herd of mountain sheep grazing, completely unconcerned with our presence. The river was low because the snow pack is only just beginning to melt at the higher altitudes. There were two young boys picking their way through the stones beside the river, just enjoying themselves, playing. It is peaceful here. I can breathe deeply and let go of things. Nothing I do will change the course of this river. It has been here for thousands of years and will continue on for many thousands of years after I'm gone. I feel small here and blessed to see such beauty.
at May 03, 2015