Jack had his soccer lesson again this morning.  He likes being able to run but isn't too interested in the drills because he's three and a half.  It does him good to run though and to learn how to listen to other adults and to take turns while playing.  The soccer coaches are saints because it's like herding cats dealing with eight young kids.

There is very little going on.  Halloween is almost here and tonight we're taking Jack to see a haunted house in the neighborhood after supper.  Yesterday we took Jack for his flu shot and he did well.  Cried for maybe ten seconds.  I would like him to get a covid shot but Gracie doesn't want him to.  Lori has gone to Singapore for ten days and when she gets back we're having a guardian meeting to decide what will happen going forward, and also if we should go ahead with a covid shot for Jack.

This meme reminded me of Mr. Pudding, thought he might enjoy it and might even try it out.

Gratuitous shot of Heidi relaxing because she makes me happy.  She is such a sweet dog; she and Jack are best of friends.
 

I saw the podiatrist yesterday and I'm now off until at least March 1st at the earlist.  She again said that it just takes a long time to heal.  She also told me that the tear is 4cm long which seems long to me.  

My appointment was in the West End of Edmonton so I stopped and had lunch with a friend.  She has cancer and her husband died last February.  We've known each other since our girls were little and I love her like a sister.  We talked and talked and talked.  It was lovely.  Her mother in law died not long ago and she shipped her son off to rehab in Victoria last week.  She's been through so much and we lean on each other, both of us understanding how fucked up families can be, despite our best efforts.  She also had a new kitten who was so sweet and tiny.  I found her sitting inside my purse, the kitten, not my friend.

I feel like crap today.  My vertigo has returned and everytime I bend my head down even a little, the whole world tilts and spins.  It's nauseating but will pass.

I'm almost done the second quilt I made from the rescued quilt I found at a thrift store.  I learned a lot while I was making it and made more than a few mistakes but as I tell Jack, that's how we learn.  Now I just have to accept that I will always make mistakes.  Jack's not the only one who struggles with making mistakes.

Big red is living up to his/her name and has finally started to turn colour.  He/she has done well this past summer and I think they'll live through the winter just fine, fingers crossed.

Jack is doing well with his potty training, finally.  The stickers and treats have worked well but he's moving past that and is deeply impressed with his ability to pee and poop on the potty.  Yesterday he pooped on the potty and made me and poppa come and look at it.  He was very proud.  Perhaps I need to take more pride in my ability to poop on the toilet as well:)

Fall is over and it's freezing at night now.  The garden is ready for winter but I'm not.  Five months of dark and cold.  I'm still stuck at home with my foot and I'm not looking forward to shorter days that feel even longer because I can't get outside in the garden.  It could be worse but it still sucks.  This is a photo of a mum I planted in August.  They're tough flowers.

Jack is settling in to our home again.  He saw his mom for a few hours, with her sister in attendance, and last night in his bath he kept saying, "Oh fuck."  Not once or twice but repeatedly.  I can't tell him that I kinda feel the same way but I did tell him we don't use that word.  I told him we say fart which didn't even slow him down.  I finally just walked away and let him get out of the tub on his own.  No point in giving him attention for swearing.

I try not to think about the future but it's always there, in the back of my mind.  

The following is for Mr. Pudding.

  We had a lovely visit with Miss Katie yesterday which was so nice and we took Jack to Wetaskiwin to visit my father in law.  Jack and my father in law got along like a house on fire which did my heart good.  There are not enough children on wards filled with old people.  People shouldn't be separated by age.  We all need to be together.  Old people have patience, wisdom and time, while children have energy and the need to play.  They're a good mix and bring out the best in each other I think.

I'm putting heavy quilts on the beds today, the highlight of my day:)  I do lead a reckless life.

We're in the process of cutting down our Mayday tree.  It has black knot fungus which looks like dogshit on a stick.  It's fatal to the tree and is very contagious to other trees of the genus Prunus, like chokecherry trees which we have in our yard as well.

We cut some branches down and then I burn them because they can't go to the garbage dump, the spores are too contagious.  We've been having a few fires which Jack has enjoyed.  He's surprisingly careful around the fire and helps drag the branches to the fire pit and helps me cut them up with loppers.  I have explained to him that the loppers are sharp and must be kept pointed downwards and he's careful with them.  I also keep a close eye on him.

Two nights ago we sat in the backyard, staring at the fire as the sky got dark.  It was lovely.  It also makes me think about the fact that we have developed computers and robots, have travelled to the moon and still humans like to sit around a fire.  We had a few marshmallows and Jack cuddled up in his poppa's arms, enjoying the closeness.  The other day Jack asked his poppa, "You be my dad?".  

He's finally settling in and slept well last night.  A couple of nights ago he was up in the middle of the night, wandering up and down stairs, crying and screaming.  He wanted milk, he didn't want milk.  He was wet but didn't want me to change his diaper.  He was beside himself and kept getting more and more upset.  Finally, I snapped at him, "That's enough!", which upset him even more.  At this point poppa stepped in and settled Jack back in bed.

The next morning I asked him how he was and he said, "You yell at me last night." and then gave me stink eye.  Note to self, keep calm, don't yell.  Last night it was just me and him as my hubby drove to Wetaskiwin to visit his dad who is still in hospital.  Jack and I got along fine and it seems I am forgiven.  We went to the park after supper and when the sun set, we walked home chatting.

The other day when I was driving someplace with him I said, "I could kick myself."  He wanted to know why I would kick myself.  I explained that it meant I was mad at myself.

I've cut my hair short and I had bedhead the other morning.  Jack looked at me and said, "Why your hair look like dat?".  

He is endlessly curious.

Fall has been beautiful this year and everyday I think this will be the last warm day.  Today really will be.  It's forecast to get cold over the next week.  I've been spending as much time in the garden as I can because it's a long winter.

 

What If

Elizabeth had a blog post this morning which made me think about the things that didn't happen because of Katie's disability and how they have affected our family.  It made me think about the unexpressed grief that comes with a disability too.

What if Katie was normal?  What if she could talk?  What if she could call her sister and they could share their day?  What if she could call me and just chat?  What if she had a boyfriend?  What if she got engaged?  What if she had a baby?  What if she had a job that she loves?  What if she got a dog?  What if she could go to the off leash with her dog and a cup of coffee?  What if she could be screened for cancer?  What if she could drive?  What if she could could make art? 

What if she didn't have to stare at people, desparate to make a connection?  What if she could tell us what's upset her so much that she bangs her head against the corner of the wall until it bleeds?  What if she could just talk?  What if she could work?  What if she could play a sport or a musical instrument?  What if she could read a book?  What if she could write her story?

What if I didn't worry about her living longer than me?  What if I wasn't her voice, her advocate?  What if she could tell us when she has a headache, or cramps? What if she wasn't born here?  I worry about that one a lot, about the disabled children born in other countries, to families that can't care for them.  

With each of those questions, there is grief attached.  A grief that is never talked about, never shared, just buried, but it exists.  It's the grief that all parents have for their disabled child I think, all of those what ifs, and we carry that grief with us everyday.  It gets better, lighter, more manageable, but something happens, another daughter gets engaged for instance, and the grief surfaces.  

Despite all that, I am thankful Katie was born into our family.  It's never been easy caring for her but that girl gives the best hugs and she has the best laugh.  She lives in my heart, still a little girl who needs her mama to watch over her, in a way that my other two children no longer need me.  She is my hard gift.

It's Thanksgiving today.  

Things I'm thankful for today.

My yard which brings me so much enjoyment.

Flowers.

Trees.

Birds at the bird feeders.

Beautiful fall weather.

We had two dead trees removed this week from between our house and the neighbor's and it went well.

We have lots of firewood.

Jack is safe.

We signed Jack up for indoor soccer.

Jack's other family is supporting us.  That fear has been eased.

The smell of turkey cooking.

A friend coming over for supper.

A very good night's sleep last night.

My hubby, thank you Treaders.

Hopeful I will find a daycare for Jack this week.

What are you thankful for today?

We saw our other grandson, Charlie, last Thursday.  We took him out for a couple of hours, the first time we'd ever been alone with him.  He's a sweet little guy.  You can tell he hasn't gotten a lot of attention in his short life.  I imagine the big guy will rectify that.  He's a wizard with children.

Friday was a stat holiday, Truth and Reconciliation Day, here in Canada.  September 30th was the day the children were taken from their reserves.  We took Jack down to Broadmoor Park and joined the crowds of people learning about Indigenous culture.  Jack had a great time at the park and played hard.  At some point, I realized that September 30th was the day when the children were taken and what that must have meant to a community.  Can you imagine having all of the children disappear from your community?  What that would do to your community? Can you imagine all of the children in this photo taken one day?  Can you imagine the pain of the parents and the grandparents?

Jack must have picked up a bug at the celebrations or at the park because he started vomiting at 4am Saturday morning and he kept on vomiting all day.  It's heartbreaking watching a little one sick.  They don't understand nausea and vomiting or what you have to do to deal with it.  I did manage to get some gravol into him a few times but it didn't seem to have much affect.  We just sat with him for most of the day and did a lot of laundry. 

He finally fell asleep about 5pm, exhausted.  He woke up briefly, vomited again and then was able to sleep through the night and felt better on Sunday.  We took him over to his other grandma's on Sunday afternoon and left him there.  Apparently, he vomited one more time on Sunday night but is on the mend now.

Monday morning I woke up with nausea and diarrhea.  I felt like absolute shit all day yesterday and even ended up laying on the floor at one point.  I hate being sick.  I know I just have to wait it out but when my whole body aches and any movement makes me nauseous, I hate it.  I never did end up vomiting, thankfully, just a whole lot of diarrhea and terrible hearburn.  I often wonder how people managed being sick a thousand years ago, without medicine and without an understanding of what caused the illness.

This morning I was able to eat breakfast and went back to bed and slept until 11am.  I feel like a human again, hurray.

I make a terrible patient.