It's been a busy week, again, or still, not sure which. I'm not exhausted tonight though which is very nice. The garden is coming along well, flowers are blooming, peas are climbing and grass is growing.
Heidi at the off leash.
I moved this clematis this spring and one flower bloomed. It's doing well though and I'm hoping next years it will have tons of flowers. Right not it's just getting itself re-established. It seems happy where it is though, less competition and more sunlight.
Jack and his poppa have water guns, so does nana. There was a lot of shooting going on last weekend and much screaming by nana when she was hit by the water gun. For a child of two, he has a surpisingly accurate shot.
I spent Wednesday morning with Katie. It was her birthday and we had a zoom meeting with a geneticist. It was a two year wait for the appointment. We are going ahead with genetic testing for Katie to see if we can find an answer for what caused her disability. She had genetic testing done twenty-four years ago but things have changed since then.
The doctor was very nice and patient. She wanted to see Katie, which was why it was a zoom call. Katie hates screens. She hates TVs, phone, computers and tablets. She doesn't like sitting and looking at them either, and she really hates when I pay attention to a person on the computer and don't give her 110% of my attention.
Katie threw toys, tried to go through my purse and my work bag. She opened drawers and pulled things out of them. She took her pants off and sat on the floor. She grabbed the cat and held/squeezed the cat until the cat bit her and then she let go of the cat. She opened up the freezer and pulled out a frozen muffin, nibbled on it and then threw it on the floor as well.
At some point the dogs found the muffin and they carried it to the living room where they had a fight over the muffin. They startled me when they started fighting and I said, "Jesus" very loudy. Then Katie came up behind me and hugged/choked me.
The whole appointment was very exciting and the doctor was very patient.
Now Katie, my ex-husband and I all need blood work done. It will take up to a year for the blood work to come back and even then, they only find an answer about 30% of the time the doctor said. We also agreed to have Katie's blood samples enrolled in clinical trials and research into rare diseases. They can't fix Katie but it would be nice to know what happened to her.
At the end of the appointment I was frazzled and I'm sure my blood pressure was elevated. That's how I lived for years and I find I just can't do it anymore. We stopped by the dog park and McDonalds on the drive back to her house. Not an amazing birthday but it's all I could manage. I did buy her the biggest balloon I could find and she loved that. Next year my baby girl turns thirty and I will turn sixty. WTF.