Wednesday, April 9, 2025


I've been banned from instagram (for now), no reason, no explanation.  My crime if I were to guess, disagreeing with politicians and people who accept lies as facts.  Because I'm such a people pleaser, I feel down, like I've done something wrong, not something right.  I have been silenced which does not feel good at all.

On the upside, it's Jack's birthday today and National Unicorn Day.  On the way to daycare, we stopped and bought a box of fifty Timbits for Jack's daycare.  He was pretty pumped about that and excited to share with everyone.  This morning hubby and I sang him Happy Birthday while he sat with a big smile on his face.  For his birthday present, we bought him a new bike.  Now he has to learn to ride without training wheels:)

Yesterday went well at court, and unless things change drastically, we won't have to go back.  The case was adjourned sine die which means it could be opened in the future, if things changed, but for now, things stay as they are.  We had a long talk with Gracie and her sister afterwards and that went well also, so a win for everyone which is very good.  We talked about TV, bedtimes, school, ADHD, exercise, expectations, and going forward.  You never know what the future will hold because if someone had told me about this conversation three years ago, I wouldn't have believed them.

I also had an appointment with Katie's psychiatrist.  Katie's behavior has not improved, ten incidents in the last month and I'm out of ideas.  The psychiatrist started her on clonidine and I guess we'll see if that helps.  It hurts my heart to see her hurting herself, and having meltdowns.  Maybe this will help.  I also requested an OT consult to check her sensory processing.  A long time ago, Katie had a weighted vest which helped her at school, it gave her more sensory feedback.  I just ordered her a weighted blanket and maybe that might help too.  Sometimes it feels like I've been looking for solutions for her my whole life.  I just want her to feel good and have some peace.

Which brings me to my middle daughter who is being knocked on her ass by MS fatigue, something I didn't even know about before she was diagnosed.  It's not regular tiredness.  Somebody described it as the feeling of staying up all night, having the flu, and having a hangover, all at once.  I want to help her and I can't.  I inadvertently upset her yesterday and I apologized, but I still feel bad.  Fuck MS.

The sun is shining though and it's supposed to go up to 15C today which is lovely and which means I want to be outside.  The garden is still mushy and muddy, but I'll find something to do out there.  I saw tiny crocuses pushing their way up through the dead leaves in the garden.  Plants amaze me.  They don't worry about the weather, or their children, they just do their thing.  Sometimes I wish I could be a tree.









20 comments:

  1. Wow, you've had a lot going on. At least you can see green shoots; I'm envious.

    When criticized & hurt, I "fret" about it. My mother always said I was "high-strung" and now I think I see what she meant.
    I would like to be someone who hears disapproval, thinks it over, decides to make a change or not, decides what to do, if anything, and then stops f'n worrying about it.
    But no. This brain has to worry itself to death.
    To comfort myself and redirect my thoughts, I repeat: "Only words of kindness and wisdom can reach me."
    We do what we can and, for me, even if it seems like something small and possibly ineffective, like the above affirmation, I'll try it. Why? Because I'm desperate to give myself a break from anxiety and defensiveness.

    I'm sorry about your middle daughter's condition. I've been tired in a way unusual for me for a few months -- nothing like you described -- and even my little bit of exhaustion is hard. I hope this will pass, for her.

    Poor Katie. And her mom, who naturally will suffer too. Here's hoping something changes for her.

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    1. Worrying seems to go with being human, doesn't it? I've never thought of you as a worrier though. It's funny how we see ourselves, and how others see us.

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  2. Glad to hear that Jack's legal situation will be stable for the foreseeable future. I sure hope his Mom will be stabilized by her new medication and can make strides in getting her life together. Hugs to your middle daughter and Miss Katie -- may their lives improve too.

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    1. I am hopeful that Gracie will continue to thrive and learn. Lately I've been having a hard time myself with Jack and being patient with him.

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  3. I, too, am glad that Jack will stay where he is for now. Gracie's sobriety is most likely tenuous at best. I hope with all my heart that she can maintain it but y'all do not want to go through all of that again. Addiction is powerful.
    I know how you suffer when things are not not going well for your children. This is the way of it, isn't it? The MS sounds horrific and of course you don't want to see Katie hurting herself. You do so much for so many.

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    1. I hope to god that Gracie stays sober. I want to get off this roller coaster:)

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  4. Some positives, especially with Jack. Spring will soon be fully here for you.

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    1. I worked in the yard for most of the day. Glorious.

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  5. You and I know how hard it is to look for positives sometimes, so way to go! Jack's birthday went well, the convo with Gracie and family went much better than expected and yet we still have our worries (more like agonies) about our children. I hurt thinking about your daughters and my own, who are facing different challenges and ones I never thought they would have to. Sigh. It's effing hard. Hugs sent your way, my friend!

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    1. Thank you Margaret. I would give up my life if it would cure the MS and Katie's disability, but that's not how it works. Sigh.

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  6. Fuck MS is right.
    Also this: please continue pointing out when politicians are assholes.

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    1. Fortunately, between Danielle Smith and trump, there is no shortage of dumb fuckery to hold up to the light.

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  7. I'm sorry you have so many things to deal with, I think you are impressive.

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  8. I'm so sorry for all that your daughters are going through. It just seems to keep coming at you non-stop. On a positive note, I'm glad Jack is happy and, for the time being at least, Gracie is being amenable! Oh and I'm not on instagram (or X) - I didn't know you could get blocked for having a different opinion! Crikey!

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    1. I think I might have made too many comments, and too similar of comments on some politicians pages. Somebody has to!

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  9. You certainly got enough on your plate at the moment, at least you don't have to go to work. National unicorn day? Is there an international one coming up or are the unicorn territorial?

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    1. I believe the German national unicorn day is in October, Oktoberfest, when many things that are not real may be seen after large amounts of beer:)

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  10. You sure do have a lot on your plate. I am sorry about your daughter's MS and Katie's troubles. I know it must be very draining. I am glad your weather is starting to warm up and that Jack's mother seems to be doing better. I hope it lasts.

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    1. The weather or the sobriety? Just kidding. I hope so too.

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