Monday, January 26, 2026


 Miss Katie has had some difficulties these past two years.  Her behavior deteriorated and then improved, a couple of times.  Yesterday when I picked her up for lunch, she was agitated.  It was like she was being pushed from the inside.  We got to the mall, I ordered some subway for us and then she started crying, just sobbing.  I put our lunch in her backpack and we headed to my house.

When we got there, she seemed okay but didn't eat much.  Then she wanted to go back to her house, so I bundled her back into my car and drove her home.  When we got there, she just sat and cried again, sobbing.  Her urine smelt awful and I wondered if she had a UTI.  I went home and tried calling some pharmacies to see if they could help, nope.  One pharmacist suggested Katie should see her family doctor who not only doesn't work weekends but usually has a two week wait to see anyone.  Plus she was in pain now.

I checked Emerg wait times and decided on the Grey Nuns Hospital because it was close to her house and had a relatively short wait time, 3 hours.  Last month a man died in the same emergency room after waiting for 8 hours to be seen by a doctor and I was actually nervous about taking her there.  Katie seemed okay in the waiting room, trying to engage everyone she could see.  She had bloodwork done which caused a lot of screaming (her) and crying (both of us).  I had even thought to bring some water so I kept getting her to drink and I managed to get a urine sample for them.

The wait wasn't too bad, about 3 hours and we were taken in to see a doc.  Katie started crying when we got to the room, she was no longer distracted (which I only figured out later).  The doc checked Katie over, she cried a lot and was screaming, ordered gravol, toradol, and a CT scan.  The doc said Katie's urine sample was fine, so they were going to check her abdomen.  So the nurses started an IV, more screaming and crying, more bloodwork because one of the vials clotted.  I was surprised to see that the meds worked, Katie settled down and I felt guilty because I hadn't realized that Katie was in that much pain.  Then the nurses gave Katie some ativan for the CT scan and Katie relaxed even more.  

She had her scan, laying still for the scan, which shocked me.  The results, Katie has an ovarian cyst and I wonder if it has been bothering her for awhile which would explain the behavioral issues which come up once in awhile.  She was in pain and didn't know what was going on or how to tell us, which takes me back to all behavior is communication.  When I took her home she was like a drunk poor girl, unsteady on her feet from the ativan.  I helped get her ready for bed and left her with her caregivers.

She has an appointment for an US this week and some pain meds.  We'll see what the US shows and she may need an MRI which would require a lot more sedation.  I had an ovarian cyst in my forties that required surgery to remove, so I guess we'll see what happens.

Update.  Katie is okay and I'm taking her for her US scan this morning.  When I called her house yesterday, she was crying again.  Apparently she had been fine, telling her caregiver her story of what happened, but when a new caregiver came, Katie told the story all over again and started crying.  I feel quite bad that I didn't realize what was going on with her.  I had no way of knowing, but I still feel like I failed her somehow.

16 comments:

  1. I had great issues with ovarian cysts that ended in a total hysterectomy. After I recovered I noticed how much calmer I felt, and how many minor illnesses went away. It made me think the uterus wasn't helping.

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  2. I am so sorry. I too suffered from ovarian cysts and they are incredibly painful. I'm sorry she isn't able to share she is in pain. It certainly would explain her behavior changes. Thank you for being her advocate. It is not an easy job and you are doing wonderfully, truly.

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  3. Bless you for being there for her! And for figuring out she needed medical help. ❤️

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  4. Poor Miss Katie! I hope all goes well with this issue. Sending good thoughts and best wishes to her.

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  5. Oh no! That's such a difficult situation- knowing how to translate actions. Poor Katie and poor you! I'm glad you got it figured out. Or at least you're on the road to figuring it out.

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  6. Cause established, to your and without doubt, her relief, or will be when it is sorted out. How rough for her.

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  7. That the problem is an ovarian cyst would explain Katie's difficulties in the past two years. Hope this can be resolved soon. Sending love to you and Katie.

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  8. The challenges you face! Hard to figure these things out sometimes isnt it. -Kate

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  9. Poor Katie! I hate the thought of her in pain and not being able to communicate that. It sounds like a stressful and emotional experience for both of you. Hope they can deal with the cyst without surgery--not sure how. Take care! xoxo

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  10. Your compassion is immense. Hope this gets resolved soon.

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  11. I was about to say that was a lovely photo of Katie, and then I read your post. Poor Katie, being in pain, frightened and not being able to communicate the cause of her distress. You handled it very well but I'm so sorry you both had to go through that!

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  12. Oh Miss Katie. Thank goodness she has a mom like you, listening and loving. I hope she feels way better and all the testing etc goes smoothly.

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  13. You did not fail her -- on the contrary, you helped get to the bottom of what was troubling her! I hope the cyst can be treated without too much trouble.

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  14. I am so sorry to read this, and I agree with Steve. You did not fail her at all. Hopefully Katie can be treated for her cyst and it will be an easy treatment. Never a dull moment, is there?

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  15. In fact, you were the one who helped her.

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  16. You were pretty insightful to actually be able to track down the problem when you did. You did the best you could!
    If it comes to surgery please ask if they can remove her fallopian tubes at the same time. This removes the chance of getting the most common ovarian cancer (despite the name, it turns out it starts in the tubes.) And I'm sure you know that ovarian cancer is one of those sneaky ones that is usually diagnosed only very late, because the symptoms are vague. This is relatively new medicine, but I believe Canada was the pioneer and provided most of the data on this, So your doctors probably already know.

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